Tell us your story

We want to hear from YOU. It can be a personal story or even just your experience at one of our events.It's so important to share your story with others. It might help someone else get properly diagnosed or even find strength during treatment or while taking care of a loved one. 

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I do not know what year my mom was diagnosed. I just know one day she was fine and the next moment she was going banc and forth to the doctors. We were convinced she will be ok. She did not share any details of her illness with her children. Her mom and my father kept the information from us. I remember when we she began treatment in a hospital in Chicago. That is when I realized she had cancer. We still did not know what kind, but she went there every other weekend. Sometime she will stay weeks at a time. She met a group of ladies she would out on outings, The food was awesome. Visiting her was always something to look forward to. She still remain positive. In 2010, my mom died. The last I saw her alive was Novembers 2010. I got the call from Michigan that my mom died in her classroom. She was a teacher and went through her entire day. When school let out my father found her. That was the worst day of my life. In 2013, I found out what my mom dies of. She had Ovarian Cancer. My dad told us 3 years later what she died from. He told us the details of her struggle mental and physically. In November the doctors told her it was nothing they can do. They gave her how many weeks she had left.

~ Khadijah, Pikesville

I want to thank you for the care package you sent me with the brochures. I took the backpack & let the kids stuff it with things for my mother in law. She got coloring books, crayons, crossword puzzles, new flip flops, new hat…they just kept finding stuff to put in it! She was overjoyed! I have let my husband look over all the information as well, especially the caregiver pamphlet. I think it has helped him a little in dealing with his mother being so sick. Even though we are miles away from one another, I can’t tell you how valuable the support from you & your organization has been to my family. Knowing there is someone out there who knows what we are going through & is willing to reach out with support is priceless. Thank you just doesn’t seem to cut it!

Thank you,

Asheville, NC

"This was my first 5k, and what a great event! I just started running in March. I attended the warm-up in July with Kai and really benefited from that as well as a 1:1 with him after. When I was a senior in high school, fifteen years ago, my girlfriend's mom died of ovarian cancer. It was very fast five months from diagnosis to losing her. She wasn't exactly on my mind when I registered, but she certainly was as I got to the band shell Saturday morning. I look forward to running for T.E.A.L. for years to come!"


Brooklyn, NY

I was diagnosed with Stage 3 Fallopian Tube cancer September 8, 2016. Two days after giving birth to my baby girl. I did not want a c section at all and feared one. However, God was watching over and my baby was not coming vaginally and I had to have a c section. That is when they found all the tumors in my body. My baby girl saved me. I was first diagnosed with primary peritoneal cancer. I completed 3 cycles of chemo and had a de bulking surgery December 6th. I just started more chemo. After the surgery and with the pathology report the DR believes it started in my Fallopian tube which changed my diagnosis. I'm BRCA 1 positive. I'm sharing just in case anyone has questions and to bring awareness. I'm sure most of you know the signs of ovarian and Fallopian tube cancer but just a reminder:

Bloating, abdominal pain, urgency to urinate, feeling full quickly after eating. Please don't take these lightly. Also, there is power in prayer and a positive attitude. The DRs are so surprised how my body is responding to the chemo and how well I did in surgery. Stay strong and have faith and hope!

Reston, VA

I am the mother of 4 daughters. My oldest daughter, Brandi, was 29 when she started having stomach issues. She had never missed a yearly checkup with her Gynecologist. Her papsmears had always been normal and her monthly cycle was regular. Brandi did get off her birth control 6 months or more prior to these issues. She saw 3 different doctors and received 3 different diagnosis! Urinary tract infection, constipation and gallstones. She was having severe stomach aches and backache. None of the prescribed medicines gave relief. Theses symptoms were severe enough to keep her in the bed in tears on a heating pad! She made an appointment with a gastro doctor. Another diagnosis, C-Diff. Sent home with a bland diet and a $600 prescription. She immediately lost weight which was chalked up to the diet. You see she was 5'9" weighing 130. So any weight loss was very noticeable! On her return check up the doctor was extremely concerned with the near 30 pound weight loss in 2 weeks. It was at this visit that he could feel a large mass in her abdomen. She was immediately referred to a Gynecological oncologist. Her CA-125 came back over 300! Normal range is 0-30. After 6 months of being misdiagnosed we had an official diagnosis, Ovarian Cancer. Surgery to de-bulk was scheduled within days. A tumor the size of a football was removed along with her uterus, ovaries, spleen and appendix. Cancer was left behind on her spine and liver. A tumor that was too high up in the abdomen had to be left. So we knew at that point Brandi would never be cancer free! But her oncologist thought he could get her to remission and keep her there for a few years. Chemo started 3 weeks after surgery. After a bowel blockage that nearly took her life she did achieve remission! She was placed on a maintenance chemo for the next 6 months. By the following year she was hospitalized again. This time a scan showed the cancer had traveled to the brain. A floating tumor the size of a golf ball. Within hours of a CT scan she was whisked off to surgery on her head. A choice had to be made, start chemo again or radiation to the head to prevent re occurrence. Radiation was chosen. We were fortunate enough to have an awesome gynecological oncologist that immediately signed her up for a clinical trial. We made the initial visit, signed over the brain tumor and all test results. She was to start a chemo pill by mouth. But the radiation really took its toll on her body and cancer was rapidly growing in her abdomen. Her bowels by this time had begun to fall apart. All treatment had to cease. We heard the words, there is nothing else we can do. Brandi passed away on March 10th 2012. She was 30 years old. Brandi gave it all she had for 15 months.You see young women don't fit the criteria for the diagnosis of Ovarian Cancer. Brandi tested negative for the hereditary gene that causes this disease. A few weeks after her passing I attended a Strike Out Ovarian Cancer softball game at LSU under the coaching of Beth Torina. Her mother is an Ovarian Cancer Survivor! After brainstorming with friends one sent coach an email. We met with Coach Beth a few weeks later and planned our 1st walk to bring awareness! GEAUXTEAL was born. I was able to keep a promise to Brandi. Spread the word about this silent killer! Thank you to all that work so diligently to spread awareness and raise money for research! The one thing I learned that is so important is this, when a woman of ANY age starts having any kind of stomach issues, visit your Gynecologist first! Rule out female problems, then see a gastro Dr. Thank you for the privilege of telling Brandi's story..........


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