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hear from YOU. It can be a personal story or even just your experience at
one of our events.It's so important to share your story with others. It might
help someone else get properly diagnosed or even find strength during treatment
or while taking care of a loved one.
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I want to thank you for the care package you sent me with the brochures. I took the backpack & let the kids stuff it with things for my mother in law. She got coloring books, crayons, crossword puzzles, new flip flops, new hat…they just kept finding stuff to put in it! She was overjoyed! I have let my husband look over all the information as well, especially the caregiver pamphlet. I think it has helped him a little in dealing with his mother being so sick. Even though we are miles away from one another, I can’t tell you how valuable the support from you & your organization has been to my family. Knowing there is someone out there who knows what we are going through & is willing to reach out with support is priceless. Thank you just doesn’t seem to cut it!
"This was my first 5k, and what a great event! I just started running in March. I attended the warm-up in July with Kai and really benefited from that as well as a 1:1 with him after. When I was a senior in high school, fifteen years ago, my girlfriend's mom died of ovarian cancer. It was very fast five months from diagnosis to losing her. She wasn't exactly on my mind when I registered, but she certainly was as I got to the band shell Saturday morning. I look forward to running for T.E.A.L. for years to come!"
I was diagnosed with Stage 3 Fallopian Tube cancer September 8, 2016. Two days after giving birth to my baby girl. I did not want a c section at all and feared one. However, God was watching over and my baby was not coming vaginally and I had to have a c section. That is when they found all the tumors in my body. My baby girl saved me. I was first diagnosed with primary peritoneal cancer. I completed 3 cycles of chemo and had a de bulking surgery December 6th. I just started more chemo. After the surgery and with the pathology report the DR believes it started in my Fallopian tube which changed my diagnosis. I'm BRCA 1 positive. I'm sharing just in case anyone has questions and to bring awareness. I'm sure most of you know the signs of ovarian and Fallopian tube cancer but just a reminder:
Bloating, abdominal pain, urgency to urinate, feeling full quickly after eating. Please don't take these lightly. Also, there is power in prayer and a positive attitude. The DRs are so surprised how my body is responding to the chemo and how well I did in surgery. Stay strong and have faith and hope!
I am the mother of 4 daughters. My oldest daughter, Brandi, was 29 when she started having stomach issues. She had never missed a yearly checkup with her Gynecologist. Her papsmears had always been normal and her monthly cycle was regular. Brandi did get off her birth control 6 months or more prior to these issues. She saw 3 different doctors and received 3 different diagnosis! Urinary tract infection, constipation and gallstones. She was having severe stomach aches and backache. None of the prescribed medicines gave relief. Theses symptoms were severe enough to keep her in the bed in tears on a heating pad! She made an appointment with a gastro doctor. Another diagnosis, C-Diff. Sent home with a bland diet and a $600 prescription. She immediately lost weight which was chalked up to the diet. You see she was 5'9" weighing 130. So any weight loss was very noticeable! On her return check up the doctor was extremely concerned with the near 30 pound weight loss in 2 weeks. It was at this visit that he could feel a large mass in her abdomen. She was immediately referred to a Gynecological oncologist. Her CA-125 came back over 300! Normal range is 0-30. After 6 months of being misdiagnosed we had an official diagnosis, Ovarian Cancer. Surgery to de-bulk was scheduled within days. A tumor the size of a football was removed along with her uterus, ovaries, spleen and appendix. Cancer was left behind on her spine and liver. A tumor that was too high up in the abdomen had to be left. So we knew at that point Brandi would never be cancer free! But her oncologist thought he could get her to remission and keep her there for a few years. Chemo started 3 weeks after surgery. After a bowel blockage that nearly took her life she did achieve remission! She was placed on a maintenance chemo for the next 6 months. By the following year she was hospitalized again. This time a scan showed the cancer had traveled to the brain. A floating tumor the size of a golf ball. Within hours of a CT scan she was whisked off to surgery on her head. A choice had to be made, start chemo again or radiation to the head to prevent re occurrence. Radiation was chosen. We were fortunate enough to have an awesome gynecological oncologist that immediately signed her up for a clinical trial. We made the initial visit, signed over the brain tumor and all test results. She was to start a chemo pill by mouth. But the radiation really took its toll on her body and cancer was rapidly growing in her abdomen. Her bowels by this time had begun to fall apart. All treatment had to cease. We heard the words, there is nothing else we can do. Brandi passed away on March 10th 2012. She was 30 years old. Brandi gave it all she had for 15 months.You see young women don't fit the criteria for the diagnosis of Ovarian Cancer. Brandi tested negative for the hereditary gene that causes this disease. A few weeks after her passing I attended a Strike Out Ovarian Cancer softball game at LSU under the coaching of Beth Torina. Her mother is an Ovarian Cancer Survivor! After brainstorming with friends one sent coach an email. We met with Coach Beth a few weeks later and planned our 1st walk to bring awareness! GEAUXTEAL was born. I was able to keep a promise to Brandi. Spread the word about this silent killer! Thank you to all that work so diligently to spread awareness and raise money for research! The one thing I learned that is so important is this, when a woman of ANY age starts having any kind of stomach issues, visit your Gynecologist first! Rule out female problems, then see a gastro Dr. Thank you for the privilege of telling Brandi's story..........
My name is Arcangela Lopez. On September 2014 I was diagnosed with Plural Peritoneal Carcinomatotis, an Ovarian Cancer. The reason I want to share my story with you is because of the way the cancer was found. For few months, almost all summer 2014 I had cough fits that would become more and more frequently. I went by family doctor several times for the cough, treated as an allergy, took lots of allergy medicine, antibiotics, and etc. Meanwhile the cough would become worse. In September I developed pneumonia. Treated with antibiotics by a family doctor, but the cough would not go away. I decided to go by a pulmonologist, Dr. Richard Yan, prescribed a CT scan of the lungs. The CT showed I had fluid at the bottom of my lungs, by the abdomen; therefore Dr. Yan prescribed a full body CT that showed two tumors in the pelvis area, an ovarian mass. In April 2014 I went for yearly OBGYM visit and was told everything was normal, therefore did not need a sonogram. I never had pain or discomfort or bleeding to suspect that something so bad was growing in me.
A doctor from NYU Langone Medical Center operated on me on October 13th, 2014. It was a stage 2 ovarian cancer. I had 18 sessions of chemotherapy at the Permutter Cancer Center. Since March 30, 2015 I am in remission. I go every three months for checkup and CA125, always pray for the best.
Hope my story will inspire everyone to listen to your body. Do not hesitate to consult a specialist.
May God Bless you.